E-NEWSDONATE

AN ONLINE APPROACH TO IMPROVING OUTCOMES

FOR DISABLED CHILDREN, THEIR CARERS AND SIBLINGS

Group of young people sitting in a circle working on a project together
  • LOCATION

    Bangalore, India

  • PROJECT DATES

    December 2021 – November 2023

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    PROJECT PARTNERS

    Shristi Special Academy

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    FUNDER

    British and Foreign Schools Society

This is our first project taking place in an urban setting in India. With our partner SSA we will be working with 70 disabled children, their mothers and siblings.

Our project will:

  • improve educational and social outcomes via innovative and online specialist teaching
  • improve the emotional wellbeing of mothers through carer support groups
  • re-integrate siblings into their local schools and thereby improve their educational and social opportunities
  • promote sustainable livelihood opportunities for mothers that can take place alongside their caring responsibilities, thereby increasing household income

BREAKING THE SILENCE FOR PEOPLE WITH MENTAL ILLNESS AND THEIR CARERS

IN EAST GODAVARI DISTRICT, ANDHRA PRADESH

Large group of people in a room, sitting and standing with their arms raised in celebration
  • LOCATION

    East Godavari district, Andhra Pradesh, India

  • PROJECT DATES

    November 2021 – October 2023

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    PROJECT PARTNERS

    Uma Educational and Technical Society

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    FUNDER

    Vitol Foundation

Our first project with new partner UETS will be identifying and supporting 500 people with mental illness and their carers.

The project will have a specific focus on:

  • promoting access to diagnosis and treatment for those affected by mental illness
  • transforming the emotional wellbeing and health of carers
  • increasing household economic security

CREATING A CARERS MOVEMENT

IN BAGALKOTE DISTRICT, KARNATAKA

Group of people sitting indoors on the floor and on chairs
  • LOCATION

    Bagalkote district, Karnataka, India

  • PROJECT DATES

    October 2021 – September 2022

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    PROJECT PARTNERS

    BIRDS

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    FUNDER

    Embracing Carers

Focussing on the advocacy aspect of the Carers Worldwide model, this project will raise awareness of carers, gain recognition of their critical role and achieve the support carers require for their health, economic and social wellbeing.

400 carers of people with disabilities will be directly impacted, specifically through:

  • Capacity strengthening of BIRDS staff and local government rehabilitation and early intervention workers
  • Promotion of 5 block and 1 district level Carers Association
  • Participation in Carers Worldwide’s new divisional level carers forum

CARING FOR CARERS

People sitting on the floor in a circle talking
  • LOCATION

    Tumakura district, Karnataka, India

  • PROJECT DATES

    June 2021 – March 2022

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    PROJECT PARTNERS

    Narendra Foundation

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    FUNDER

    Embracing Carers and Wyn and Ken Lo Memorial Foundation

This project is working with 500 carers of children and adults with severe disabilities in a tripartite arrangement between the Narendra Foundation, Carers Worldwide and government volunteers with a specific focus on:

  • building the capacity of local rehabilitation workers
  • establishing carer support groups to provide information, advice and emotional support
  • enabling carers and their families to access existing government support

BREAKING THE SILENCE

EMPOWERING AND SUPPORTING PEOPLE WITH MENTAL ILLNESS AND EPILEPSY AND THEIR CARERS IN TRIBAL REGIONS OF ODISHA

Carers with food production materials
  • LOCATION

    Koraput District, Odisha, India

  • PROJECT DATES

    April 2021 – March 2022

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    PROJECT PARTNERS

    WORD

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    FUNDER

    The Live Love Laugh Foundation and Maskati Trust

This project is working with 600 people with mental illness and epilepsy and their carers, with a specific focus on:

  • improving access to mental health services and treatment
  • supporting the mental health of carers
  • raising awareness of issues around mental health and caring
  • establishing sustainable links between carers and local health authorities
  • strengthening the capacity of staff and carers
  • improving livelihoods options and income levels for people with mental illness and epilepsy and their carers

In addition, all the families were supported with emergency food provision, supply of vital medicines and mental health support during the height of the COVID pandemic.

A NEW BEGINNING IN KORAPUT

RAISING AWARENESS AND IDENTIFYING PEOPLE WITH MENTAL ILLNESS AND THEIR CARERS IN BOIPARIGUDA AND KORAPUT BLOCKS

Female carer stood with her daughter in a wheelchair
  • LOCATION

    Odisha, India

  • PROJECT DATES

    January 2020 – March 2022

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    PROJECT PARTNERS

    EKTA & SPREAD

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    FUNDER

    Southall Trust, Kit4Carers, Maskati Trust and Brian Mercer Trust

Following a 6 month pilot project funded by The Live Love Laugh Foundation, this project has expanded into a further two blocks with additional funding from new donors and is working with 1,850 people with mental illness and epilepsy and their carers.

The project is focussing on:

  • Capacity strengthening of our partner staff at SPREAD and EKTA staff on carers and the challenges they face, and on mental illness and epilepsy
  • Raising awareness and promoting understanding of carers and people with mental illness and epilepsy in the local communities
  • Working with local health authorities and the district mental health programme to organise mental health camps providing treatment and support for people with mental illness and epilepsy

COVID19 put an end to the follow-on funding for the project and we are still seeking funding to implement a full-scale, 3-year project in the region with the potential to impact the lives of 35,000 carers, people with mental illness and epilepsy, and their family members.

CARING FOR CARERS

Elderly carer stood outside in India
  • LOCATION

    Chamarajangar District, Karnataka, India

  • PROJECT DATES

    April 2019 – March 2022

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    PROJECT PARTNERS

    Margadarshi

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    FUNDER

    Scott Bader Commonwealth Charity Fund and Embracing Carers

This project is the first project between ourselves and Margadarshi and is working with 1,123 carers across five taluks of Chamarajnagar district.

Carers have been organised into 109 carers groups, supported by 5 block level federations. Carers are being linked to existing government schemes and programmes for livelihoods, health and education support for their children, and will be able to access welfare entitlements for those they care for. 25 carers trained by the project in barefoot counselling are providing mental health support to carers.

FAMILY CAREGIVING & PUBLIC POLICY IN INDIA

CREATING NEW OPPORTUNITIES FOR RECOGNITION AND SUPPORT

Carers Day parade in India with representative from Commonwealth Foundation
  • LOCATION

    Andhra Pradesh, Jharkhand, Karnataka & Odisha, India

  • PROJECT DATES

    October 2018 – September 2022

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    PROJECT PARTNERS

    NBJK, EKTA, WORD, SACRED, SAMUHA & SPREAD

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    FUNDER

    Commonwealth Foundation

This project aims to build on the results that we have achieved so far in India at the local government level.

At the end of 2018 we received funding from the Commonwealth Foundation to develop a new four-year project that will upscale and complement our previous project “Promoting the Recognition and Inclusion of Carers of the Disabled and Mentally Ill in India”.

 

It seeks to strengthen civic voice in advocating for the rights of family carers and is encouraging the passing of favourable policy and legislation for carers at the national level.The stronger civic voice will be created through the formation of State Level Carers Forums (SLCFs) and an Indian National Alliance of Carers (INAC).

 

Working with our existing partner organisations in four states – Andhra Pradesh, Jharkhand, Karnataka and Odisha – this project will make use of existing carers groups and Carers Association networks to increase the reach and impact of our work across India. Our key priorities in this project include:

 

  • Implementing services at a local level that directly support carers, and ensuring the services become enshrined in policy at a local and national level
  • Designing an engagement approach that is capable of influencing local, state and national level policy that will immediately enrich plans for our work in India. This approach will then shape our work further afield in Nepal and Bangladesh and assist our formation of our longer-term South Asia strategy
  • Leveraging the infrastructure and capacity created by our work to date at the village and district levels in order to achieve significant steps towards establishing a robust civil society movement that is able to successfully petition for the recognition of the human rights of Indian carers. This will be done by enhancing the capacity of the Carers Associations and increasing the representation of carers from grass roots level upwards.

India

Completed Projects

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