Female engaging in production activity in Nepal

    Baglung and Myagdi, Nepal


    April 2019 – March 2021

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    LEADS Nepal

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    UK Aid Direct

In April 2019 Carers Worldwide and LEADS Nepal launched a new, two-year project titled “Promoting social and economic empowerment of carers by strengthening women-led Carers Associations” which is being funded by a Jo Cox Foundation Memorial Grant as part of the UK government's UK Aid Direct programme.

The purpose of the project is to further extend and consolidate the work of Carers Associations (CAs) and Carers Cooperatives (CCs) in Baglung and Myagdi, Nepal which were established in a previous project carried out by LEADS Nepal and ourselves in 2014 – 2017. This new project aims to raise awareness of carers’ existence, role and needs; lobby for practical support; and advocate with local government for policy changes and recognition.


This project has a specific focus on advocacy and the economic inclusion of carers with the aim of strengthening and empowering, predominately female, carers in both the civil society space and in their immediate communities. The ultimate outcome, by the end of the project, will be strong, fully fledged CAs who can independently advocate for the rights of carers, and CCs who can facilitate opportunities and economic security for carers.


The CAs will be recognised as the collective voice of a hitherto vulnerable group, bringing carers into the local government and community agenda and ensuring this neglected group can come out of their homes, be socially and economically empowered, continue to provide the quality care their ill relatives require, and together bring their families and communities out of poverty.


Quantitative research has been conducted in June 2019 and published in December 2019 that assesses the extent to which Carers Associations and Carers Cooperatives empower predominately female carers in Baglung and Myagdi. You can read ‘Carers: Choice and Control’ which is the published report for this research.



Carers and disabled adults and children as part of a parade in Nepal

    Kathmandu Valley, Nepal


    November 2016 – July 2020

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    Self-Help Group for Cerebral Palsy, Nepal

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    National Lottery Community Fund

This project promotes the social, emotional, medical and economic wellbeing of carers, mostly mothers, of children with Cerebral Palsy and other neurological disorders living across the Kathmandu Valley.

Many of the carers targeted in this project had their livelihoods and properties destroyed in the earthquakes that devastated the region in 2015. As carers, they were often restricted to the home, isolated from society and unaware of their rights so they did not realise that they could have accessed government and NGO support in the weeks and months that followed the earthquake.


The purpose of this project is therefore to raise awareness of carers and their rights, and to establish carer-friendly services that can empower this vulnerable community of carers.


Our Baseline Study Report ‘Caring for Carers of Children with Cerebral Palsy in Nepal’ provides a full breakdown on the needs and problems facing carers in this project.


Key findings from the report include:

  • 97% of carers are women and 94% are mothers
  • 63% of carers are not earning an income (although 97% are of working age)
  • 16% of the households of carers have nobody earning
  • 41% of carers were unable to take a break from caring
  • 68% of carers reported feeling isolated or lonely
  • 75% of carers had significant concerns about their financial situation
  • 72% of carers had physical health concerns
  • 76% of carers reported significant anxiety
  • 55% of carers experienced chronic lack of sleep (a significant factor affecting the wellbeing of carers)


Key highlights and achievements from the first three years of the project were:

  • 391 carers lives impacted
  • 23 local self-help groups and 5 Cluster-Level committees set up
  • Carers Day celebrated for the first time in Kathmandu
  • 11 local doctors trained on the needs of carers
  • 3 health camps held with a total of 78 carers being assessed and starting necessary treatment
  • Counsellors visiting all of the carers groups
  • SGCP staff being trained in barefoot counselling


In the final year of the project we are focussing on strengthening the existing carers groups, forming a Carers Association, continuing medical and counselling support, helping carers establish sustainable livelihoods, and promoting alternative care arrangements.

``This project has shown us the way to having our voices heard and recognised. We will work hard to make it sustainable.``

Carer Representative


Completed Projects