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Completed Projects: India

Improving educational, developmental, economic and emotional outcomes

For children with disabilities, their primary carers and siblings
Group of young people sitting in a circle working on a project together
  • Location

    Bangalore, India
  • Project Dates

    December 2021 – November 2023
  • Project Partners

    Shristi Special Academy
  • Funder

    British and Foreign Schools Society
We rely on your help to continue our work supporting carers in Bangalore, India. Please donate today using the button below:
This was our first project taking place in an urban setting in India. With our partner SSA we worked with 70 disabled children, their mothers and siblings.
Our project:
  • improved educational and social outcomes via innovative and online specialist teaching
  • improved the emotional wellbeing of mothers through carer support groups
  • re-integrated siblings into their local schools and thereby improve their educational and social opportunities
  • promoted sustainable livelihood opportunities for mothers that can take place alongside their caring responsibilities, thereby increasing household income

Creating A Carers Movement

In Bagalkote District, Karnataka
Group of people sitting indoors on the floor and on chairs
  • Location

    Bagalkote district, Karnataka, India
  • Project Dates

    October 2021 – October 2023
  • Project Partners

    BIRDS
  • Funder

    Embracing Carers

We rely on your help to continue our work supporting carers in Karnataka, India. Please donate today using the button below:

Focussing on the advocacy aspect of the Carers Worldwide model, this project raised awareness of carers, gained recognition of their critical role and achieved the support carers require for their health, economic and social wellbeing.
400 carers of people with disabilities were directly impacted, specifically through:
  • Capacity strengthening of BIRDS staff and local government rehabilitation and early intervention workers
  • Promotion of 5 block and 1 district level Carers Association
  • Participation in Carers Worldwide’s new divisional level carers forum

Family Caregiving & Public Policy In India

Creating New Opportunities For Recognition And Support
Carers Day parade in India with representative from Commonwealth Foundation
  • Location

    Andhra Pradesh, Jharkhand, Karnataka & Odisha, India
  • Project Dates

    October 2018 – March 2023
  • Project Partners

    NBJK, EKTA, WORD, SACRED, SAMUHA & SPREAD
  • Funder

    Commonwealth Foundation

We rely on your help to continue our work supporting carers in Andhra Pradesh, Jharkhand, Karnataka & Odisha, India. Please donate today using the button below:

This project aims to build on the results that we have achieved so far in India at the local government level.

At the end of 2018 we received funding from the Commonwealth Foundation to develop a new four-year project that will upscale and complement our previous project “Promoting the Recognition and Inclusion of Carers of the Disabled and Mentally Ill in India”.

It seeks to strengthen civic voice in advocating for the rights of family carers and is encouraging the passing of favourable policy and legislation for carers at the national level.The stronger civic voice will be created through the formation of State Level Carers Forums (SLCFs) and an Indian National Alliance of Carers (INAC).

Working with our existing partner organisations in four states – Andhra Pradesh, Jharkhand, Karnataka and Odisha – this project will make use of existing carers groups and Carers Association networks to increase the reach and impact of our work across India. Our key priorities in this project include:

  • Implementing services at a local level that directly support carers, and ensuring the services become enshrined in policy at a local and national level
  • Designing an engagement approach that is capable of influencing local, state and national level policy that will immediately enrich plans for our work in India. This approach will then shape our work further afield in Nepal and Bangladesh and assist our formation of our longer-term South Asia strategy
  • Leveraging the infrastructure and capacity created by our work to date at the village and district levels in order to achieve significant steps towards establishing a robust civil society movement that is able to successfully petition for the recognition of the human rights of Indian carers. This will be done by enhancing the capacity of the Carers Associations and increasing the representation of carers from grass roots level upwards

A New Beginning In Koraput

Raising Awareness And Identifying People With Mental Illness And Their Carers In Boipariguda And Koraput Blocks
Female carer stood with her daughter in a wheelchair
  • Location

    Odisha, India
  • Project Dates

    July 2022 – June 2023
  • Project Partners

    EKTA & SPREAD
  • Funder

    St James Place

We rely on your help to continue our work supporting carers in Odisha, India. Please donate today using the button below:

This project has seen the Carers Worldwide Model implemented with 3,300 people with mental illness and epilepsy (PWMIE) and their carers, with a specific focus on building up the skills of partner staff, raising awareness of the issues that unpaid carers face and identifying people with mental illness and epilepsy and organising mental health camps to provide treatment and support for newly identified cases.

A Voice For Carers

Achieving Recognition And Inclusion Of Family Carers Of The Disabled From Adivasi Communities Of Odisha
Mother, father, teenage son and baby stood outside in village in India
  • Location

    Koraput District, Odisha, India
  • Project Dates

    September 2017 – August 2020
  • Project Partners

    EKTA, SPREAD & WORD
  • Funder

    Rangoonwala Foundation India Trust
We rely on your help to continue our work supporting carers in Odisha, India. Please donate today using the button below:
This project transformed the lives of 1,500 carers of people with disabilities and mental illness from marginalised tribal communities in Koraput, one of India’s poorest districts.
Key outcomes included:
  • 1500 carers joining 115 carers groups
  • Setting up 37 cluster level groups and one district level Carers Association with carer representatives from across the project area
  • 1049 carers receiving livelihoods training
  • 247 carers receiving direct financial support to establish their livelihoods activities
  • Strong links established with local health professionals and government officials and a commitment to continue working collaboratively to include carers

Take a look at the independent evaluation report of the project to find out more. For more details on the needs of carers in this project, take a look at our baseline survey report from the project locations.

Breaking The Silence

Empowering And Supporting People With Mental Illness And Epilepsy And Their Carers In Tribal Regions Of Odisha
Carers with food production materials
  • Location

    Koraput District, Odisha, India
  • Project Dates

    May 2019 – April 2020
  • Project Partners

    WORD
  • Funder

    Live Love Laugh Foundation
We rely on your help to continue our work supporting carers in Odisha, India. Please donate today using the button below:
The purpose of this project was to improve the mental health of 600 persons living with mental illness and epilepsy, and their carers, by creating a sustainable system of mental illness prevention and treatment.
Key aspects of the project included:
  • Training WORD staff on the carers’ issue and developing their knowledge on mental illness and epilepsys
  • Registering a Carers Association in the project region
  • Improving access to health care and treatment for persons living with mental illness and epilepsy through mental health camps
  • Promoting lasting collaboration between carers and local health authorities
  • Find ways to support carers and their families financially

Invisible To Visible

Documenting The Lives Of Carers In India
  • Location

    Andhra Pradesh, India
  • Project Dates

    January 2017 – December 2018
  • Project Partners

    SACRED
  • Funder

    Wellcome Trust

We rely on your help to continue our work supporting carers in Andhra Pradesh, India. Please donate today using the button below:

We were delighted to collaborate with disability researcher Dr Mary Wickenden to carry out this participatory project.

The project documented the day-to-day lives of carers in the form of a short film, which was then used to promote awareness of the realities, challenges and impacts of caring for a family member.

Community leaders, health professionals and government officials engaged in a series of events at which they viewed and discussed the film. After the discussions, those persons were invited to take action for the carers in their local area and to pledge to support and promote their cause.

Promoting The Recognition And Inclusion

Of Carers Of The Disabled And Mentally Ill In India
Female carer with her two small, brown goats in India
  • Location

    Karnataka, Andhra Pradesh & Jharkhand, India
  • Project Dates

    October 2014 – September 2017
  • Project Partners

    SAMUHA, SACRED & NBJK
  • Funder

    Commonwealth Foundation

We rely on your help to continue our work supporting carers in Karnataka, Andhra Pradesh & Jharkhand, India. Please donate today using the button below:

Our local project partners, SAMUHA, SACRED and NBJK worked with a total of 1935 of people with disabilities and mental illness carers in this project, 82% of whom were women.

At the beginning of this project, extensive data was gathered to ensure that we had an in-depth understanding of the issues and challenges that carers and their families faced. The results of this data have been published in a baseline study report. This data-gathering exercise enabled us to build beneficiary-led programmes that met the specific needs of the carers involved in the project.

A key aspect of the project was building the capacity of our three partner organisations so that they could effectively promote the inclusion of carers into mainstream programmes and create carer-specific services.

Key achievements of this project include:

  • 171 carers support groups were formed and federated into 3 district level Carers Associations
  • 289 carers received short respite breaks
  • 481 carers received direct support to establish livelihood activities that can co-exist alongside their caring responsibilities
  • 546 carers were linked to government and local NGO livelihood and insurance schemes
  • 4 Community Caring Centres were established to provide daily care for 40 severely disabled children, enabling their mothers to have time to earn an income
  • 636 carers received counselling support
  • Carers Day was celebrated in India for the first time ever

Creating Sustainable Livelihoods And Relieving Household Poverty

For Unpaid Family Carers Of People With Disability Or Mental Illness In India
Chinta Devi and her snack shop
  • Location

    Jharkand & Karnataka, India
  • Project Dates

    January 2016 – December 2016
  • Project Partners

    NBJK & SAMUHA
  • Funder

    Scott Bader Company Limited & Evan Cornish Foundation

We rely on your help to continue our work supporting carers in Jharkand & Karnataka, India. Please donate today using the button below:

Focusing on high poverty areas of Jharkhand and Karnataka states, 154 carers received training and support to initiate new livelihoods such as tailoring, vegetable growing, small animal rearing, broom making and carpentry.

In each project location, a Community Caring Centre was also established to provide quality care for children with disabilities, enabling carers to pursue their chosen livelihood.

The project gave carers, who were previously unable to work because of their caring responsibilities, the opportunity to identify a suitable income-generating activity and pursue it. By the end of the project carers’ incomes had increased significantly, bringing many families above the poverty line for the first time. In addition, carers’ self-esteem increased as a result of engaging regularly in a livelihood and this led to them receiving greater recognition from their community.

The lives of the children they care for were also enhanced due to the establishment of Community Caring Centres, which gave them the opportunity to interact outside of the home, socialise, learn new skills, and receive regular educational and therapeutic input.